Friday, 02 July 13:00

Speakers:  

Dervla Kelly: Stakeholder perspectives on cancer services in the Mid-west

Jon Salsberg: What is PPI and challenges in operationalising PPI 

Bandar Alamri: An example of PPI in research: researcher perspective 

Ciara McNamara: Lessons learned about how to do PPI well: PPI representative perspective 

Panellist Profiles

Jon Salsberg, Senior Lecturer in Primary Healthcare Research – Public and Patient Involvement, University of Limerick 

Dervla Kelly, Lecturer in Medical Education, University of Limerick and pharmacist

Bandar Alamri, PhD student at CSIS at UL, Lero Research Centre 

Ciara McNamara, Represents of patient and public interests in several research projects, Patient Voices in Cancer Steering Committee member 

Des Leddin, Adjunct Professor Internal  Medicine (Gastroenterology) Dalhousie University, Canada, and University of Limerick, WGO Research committee Chair 

Abstract 

The aim of this meeting is to demystify the process of patient and public involvement (PPI) PPI in cancer research, give examples where PPI has been used well, where PPI is needed, explore the challenges of involving patients and the public in cancer research and show why you need to consider incorporating this perspective into your work and grant proposals.

PPI in research design means research being carried out ‘with’ or ‘by’ patients and the public rather than ‘to’, ‘about’ or ‘for’ them. In advance of the meeting, we invite you to watch a short video explaining PPI: https://www.youtube.com/watch?v=SqnvZ6f51Bc&t=386s and email any questions you would like answered to Dervla.m.kelly@ul.ie

University of Limerick Cancer Network (ULCaN): Developing a research focused infrastructure that facilitates project design and development between multidisciplinary teams working along the ‘The Cancer Journey’

Cancer is a debilitating disease and it is a significant strain on families, health care workers and on the economy. At the University of Limerick and University Hospital Limerick, we have pockets of excellent cancer research activities scattered throughout the network. Our researchers are contributing significantly to the understanding of cancer and are integral to projects that are having real impact and influencing national and international policy. Through ULCaN, we are creating an infrastructure to facilitate academic and clinical researchers to undertake multidisciplinary research by providing a roadmap to assemble teams, illustrate mechanisms to facilitate the sharing of information and promote opportunities for project development to build capacity in UL and UHL.

The cluster and its associated activities will help propel the reputation of Health Research Institute as an Institute that can perform holistic disease research. Our overarching objective is to help patients on the Cancer Journey. Our cluster is truly multidisciplinary and consists of 4 overlapping core pillars:

(1) Patient Perspectives

(2) Clinical Trials and Interventions

(3) Basic Biomedical Science, and

(4) Development novel approaches to share information and manage data will underpin these pillars.